Sabtu, 23 Juli 2016

10 HAL PENTING YANG PERLU DIPERHATIKAN

Tak ada pengobatan sim salabim..........Recover itu didapatkan dari latihan, pengulangan ber ulang ulang. Latihan sendiri. Jangan hanya menghabiskan waktu, duduk nonton TV sambil menunggu jadwal therapy di Rumah Sakit.

Banyak sekali contoh latihan di You tube baik itu latihan physik maupun latihan game otak, musik untuk latihan bicara, latihan keseimbangan dan masih banyak lagi.

Dibawah ini saya copy satu tulisan yang sangat berguna.

Whether you’re learning a new skill or re-learning a lost one, it’s clear we must practice the thing we want to get better at. Unfortunately, many stroke survivors, recovering but not yet ready to return to work, sit at home alone between therapy sessions. They turn to TV to pass the time, despite being willing to do the exercises they need to improve their skills.

Fortunately, there are new technologies (such as an app that helps you practice talking or a video game that guides you through meaningful movements) that can help provide intense, meaningful, and skilled stimulation that will change their brains for the better. Understanding how neuroplasticity works can help you evaluate which methods can truly help you reach your goal.

Regrettably, there are some people who are exploiting the term neuroplasticity to give brain injury survivors false hope that they can get better with unproven treatments that require little to no effort. If the therapy does not have you directly practicing the skill it claims to improve, please be cautious.

There are no quick-fixes (remember: intensity and repetition matter), and there is no one-size-fits-all solution (remember: specificity and relevance matter). Anyone who tells you otherwise, using brain-branding, neuro-marketing, or brain-training terminology while charging you for a service or product, is banking on you not knowing the difference. But now you do.
Neuroplasticity is a big word getting a lot of buzz. It means the brain (“neuro”) can change (“plastic”). We hear a lot about it in stroke and brain injury rehab because it gives hope to survivors that their brains can heal, adapt, and rewire after they have been damaged. We also hear the word in advertisements for new treatments or programs. What exactly is neuroplasticity, and how does it work?

Intuitively, we know that we get better at the things we practice, and we are shaped by our experiences. Therapy for a damaged brain is essentially no different. The best therapies exploit how neuroplasticity works by using repetitive positive experiences to forge and strengthen pathways in the brain. To better understand how this works, we look to the research published by Kleim & Jones that outlines the 10 principles of experience-dependent neuroplasticity.

1) Use it or lose it
The skills we don’t practice often get weaker.

2) Use it and improve it

The skills we practice get better.

3) Specificity

We must skillfully practice the exact tasks we want to improve.

4) Repetition matters

We must do a task over and over again once we’ve got it right to actually change the brain.

5) Intensity matters

More repetitions in a shorter time are necessary for creating new connections.

6) Time matters

Neuroplasticity is a process rather than a single event, with windows of opportunity opening for different skills at different times. In rehabilitation, starting earlier is usually better than starting later.
Recent research shows that even 5+ years post-stroke, people with aphasia made significant progress in language skills using Language Therapy daily.

7) Salience matters

To change the brain, the skill we’re practicing must have some meaning, relevance, or importance to us.

8) Age matters

Younger brains tend to change faster than older brains, but improvement is possible at any age.

9) Transference

Practicing one skill can result in improvement of a related skill.

10) Interference

Learning an “easier way” of doing something (i.e. a bad habit or compensation) may make it harder to learn the proper way.
Intuitively, we know that we get better at the things we practice, and we are shaped by our experiences. Therapy for a damaged brain is essentially no different. The best therapies exploit how neuroplasticity works by using repetitive positive experiences to forge and strengthen pathways in the brain. To better understand how this works, we look to the research published by Kleim & Jones that outlines the 10 principles of experience-dependent neuroplasticity.

Senin, 11 Juli 2016

KAPAN MULAI BEKERJA LAGI ?. ORANG LAIN TIDAK MENGERTI PENDERITAAN ORANG STROKE


            2 MONTHS AFTER STROKE





Secara lahiriah, penampilan luar penderita stroke nampak biasa biasa saja ketika duduk di kursi di rumah atau di luar rumah. Tetap senyum seperti dulu, wajah masih segar memerah. Teman teman atau keluarga suka  bertanya  kapan aktif lagi atau kapan masuk kerja lagi.
Mereka sama sekali tidak tahu apa yang dialami sendiri oleh penderita stroke. Mereka sama sekali tidak mengerti lain diluar lain didalam.

Bahkan keluarga sendiri yang terdekat pun tidak mengetahui secara pasti apa yang dialami oleh istri, suami atau Ayah mereka yang terkena stroke. Si penderita sendiri memilih memendam dalam hati, karena tidak ingin lebih membebani keluarga secara physik, mental maupun keuangan.

Kami penderita merasakan betapa beratnya bagi keluarga merawat penderita seperti menyiapkan makanan/ minuman khusus, mungkin menyuapi, memandikan, mendorong kursi roda, membawa ke tempat pengobatan, menyediakan pispot dan  membuangnya sampai mencari uang untuk biaya pengobatan yang relatif mahal.

Jika ada yang tahu penderitaan kami penderita stroke adalah mereka yang punya keluarga sendiri sebagai penderita. Yang paling mengetahui dan merasakan penderitaan kami adalah sesama penderita baik yang ada di dalam Negeri maupun di Luar Negeri. Yang mampu berhubungan di media social biasanya saling bertukar pengalaman, saling menguatkan dan saling mendoakan.
Tiga contoh pengalaman penderita dari Amerika saya copy di akhir tulisan ini.

Setiap penderita mengalami hal hal yang berbeda beda satu sama lain tergantung kepada luasnya serangan, usia maupun jenis serangan. Yang sama adalah masa penyembuhan yang amat panjang dan melelahkan bahkan bisa sepanjang hidup. 

Ada penderita sudah yang bosan bergantung di kursi roda, punggungnya sakit dan akhirnya jadi membungkuk. Ada juga yang sebelah kakinya sering terjadi kejang  kejang jika timbul emosi, suasana tegang atau udara dingin. Ada yang bicaranya pelo, tidak jelas. Ada juga yang memory ingatannya terkena serangan lupa dimana alamat rumah, nomor telpon, lupa nama anak anak. Sering lupa apa saja yang baru terjadi  tetapi ingat masa lalu masa masih kanak kanak.
Sebelah tangan dan kakinya lemas, kaki tidak bisa diangkat. Kaki bengkak karena terlalu lama duduk, jika diusahakan berjalan dengan tongkat, takut jatuh karena belum tentu ada yang mendampingi , karena kesibukan keluarga yang bekerja, masak, sekolah dll.

Masa paling sulit adalah di malam hari, terkadang sulit tidur, terbangun buang air jam 2 – 3 pagi kemudian tidak bisa tidur lagi sampai pagi. Kaki yang terserang terasa nyut nyutan karena tertindih badan sehingga mengganggu tidur.
Sering menangis dimalam hari, berdoa memohon jika memang sudah waktunya, sudah merasa siap, begitulah doa para penderita. Namun demikian semangat hidup terus bergelora ingin melihat anak anak berhasil atau cucu bertumbuh besar.

Pada umumnya teman dan keluarga tidak tahu devinisi Stroke dan akibatnya, mereka hanya tahu kulit luarnya saja. Beda dengan sebuah Buku yang covernya mungkin kurang menarik tetapi isinya bermutu. Kalau penampilan orng Stroke, luarnya bisa nampak indah, penuh tawa dan senyum tetapi dalam keseniriannya dia menangis bahkan sering putus asa.

Kesedihan juga bertambah ketka teman teman dan keluarga semakin menjauh, tidak lagi menelpon atau SMS, BBM bahkan tidak lagi datang berkunjung kerumah.  Nanti teman atau keluarga akan datang berkunjung ketika penderita sudah terletak di peti mati dan mengatakan dia adalah teman.

Dalam situasi begitu para penderita masih tetap berharap dan berusaha semampunya untuk berlatih terus menerus sampai badan berkata stop, istirahat. Penderita juga tidak berhenti  mencari pengobatan baik pengobatan dokter maupun pengobatan alternatif. 

Hari hari kami lalui, kami nikmati  apa adanya. Ada hari merasa lemas ada pula hari masa segar bugar. Kami akan tetap berusaha sekuat mungkin agar bisa hidup normal seperti sedia kala, mengurangi ketergantungan bahkan kalau  bisa bekerja kembali menghidupi keluarga. 

Dibawah ini saya copy keluhan 3 orang penderia Stroke dari Amerika yang pada intinya dirasakan oleh penderita stroke dimana saja.

1.Dough Ballard, Florida
A lot of people mean well by saying that you look great and I would never know you had a stroke. I had one, and I looked to the average person that I was ok...except I couldn't remember where I lived, what my phone number was, how many brothers and sisters did I have, what was my dogs name, who was my partner in the room,  who's  car was that, what is a windshield wiper for ......oh yes, I was doing great! I
Think so many people don't know what to say, and they are concerned when they see us but really are not encouraging, unless they have one close o them who has had a stroke and knows what we go through and how we have to relearn all the basics of daily life.
A lot of friends never call after you have the stroke and they never offer any visits or to spend time with us. As I get better I realize that so many people are in the dark about strokes and how to help a person/friend.
We are on a journey and we have to continue on and fight our ways back to where we use to be, we are not the same anymore but we can go on. We remake our minds and our life and we are survivors. IT is what it is, and we have to accept it as what has happened has already been done, we can now only try to make the situation better and as good as we can.
 Never give up, keep trying!
2.Jennifer Watson Hall)
Got to rant.
Everyone says to my husband, you look great you are doing awesome, when you going to be released to go back to work ? Really ?
Don't you think my husband would live to go back to work and not see me struggle. But wait,he has fluid on his brain from a hemerratic stroke, has no feeling on right side of his body, cognitive issues, slurs his words, can not see out of right eye, or hear in his right ear, has a leaking aortic valve and right kidney does not work, but of course he is going back to being a pipe fitter in oh I don't know NEVER !!
People just don't get it and have no clue what I or any of the stroke victims or caregivers go through !!

3.Stephen Douglas Shepard
What's with the stroke survivors that make some of us look bad. I've had people tell me about someone they know who had stroke and they were doing everything they did before they went into the hospital. They look at me like I'm faking my injuries. Makes me a little mad.
I can't use my arm and hand, I get dressed with one hand can't even get out of bed on my own still and still piss in a bottle at night because I can't walk to the bathroom at night. Walk in my shoes for a day. But they'll tell me you've been like this over a year.

They don't understand what I go through, they always have expert advice how to get well. Or an affirmation I need to tell myself. So very sorry to vent my frustrations, I worry and think each and everyday "will I be like this forever, and never be happy or healthy again in my lifetime ?"
 Di posting oleh : Pinondang Situmeang
Email :c2_pin@rocketmail.com









Kamis, 23 Juni 2016

SUARA HATI PENDERITA STROKE AUSTRALIA

Walkers on their way
Stroke walk Kansas city, US

Saya menemukan artikel dari penderita stroke warga Australia tentang 13 hal yang perlu diketahui tentang Stroke yang berguna baik untuk penderita stroke maupun mereka yang masih sehat. Ada beberapa hal penting diketahui adalah :

A. Walau Dokter sudah memvonnis tidak akan bisa berjalan lagi, ternyata itu tidak benar. Masih banyak kesaksian penderita yang bisa berjalan kembali. Jadi tetapalh optimis.
B. Orang sehat, tidak merokok, berolah raga, tidak minum alkohol bisa juga terserang stroke.

Selengapnya saya copy seperti dibawah ini.



Walk again



13 TRUTHS STROKE SURVIVORS
WISH OTHERS  UNDERSTOOD
A stroke happens when the blood supply to the brain is interrupted. Everyone who has a stroke is affected differently, and some may experience problems on a certain side of their body (for example, a stroke on the right side of the brain can impact the left side of the body). Others may have difficulty eating, breathing and moving if they experience a stroke at the base of the brain.
And even though the World Stroke Organization reports that 1 in 6 people will have a stroke in their lifetime, the average person knows little about what happens before, during and after a stroke. So the Mighty teamed up with the National Stroke Foundation of Australia and asked stroke survivors what they wish others understood about their experiences.

Here’s what they had to say:
1. “Not knowing the cause of my strokes is something that terrifies me daily. I don’t know if I will have another and if I’ll be alone with my daughter again if I do.” — Rosie Bell
2. “Your life changes. Your previous life is no longer, and you are now on a different path.” —Karen Kelsey
3. “Some days are better than others. Some days it’s hard to be strong.” —Adam Colbourne
4. “I’d tell people to get your blood pressure checked! Ironically, my mum had a massive pontine stroke on World Stroke Day seven years ago and died 10 days later. I’ve only just turned 40 and have hypertension too; I am on anti-hypertensive medication as a result. I learned from experience. It can happen to anyone! My mum didn’t smoke or drink and she walked every day.”
—Cecelia Cooke

5. “Every day is a struggle mentally and physically… Although it gets better over time, it’s a lifelong rehab!” –Ida Dempsey
6. There is a need of rehabilitation after the hospital charges – Tracey Roberts
7. Side effects of stroke can be invisible – Astrid Pianto
8. I am still fighting to get the word aphasia, known in the wider community and it’s hard
- Wendy crop


9. Healthy people have strokes. I never smoked or drank alcohol. I played weekly sports until 83 years of age – Narelle Huett of behalf of her father
10. After nearly four years it still takes a lot longer to do things – Jen J ay


11. Stroke do not discriminate. Any age/gender nationally fitness. It can happen to any one
- Linda Steuer

12. Living alone after stroke is more lonely then loneliness – El Just El
13. Never give up hope. I was told I would never walk again. My left side was paralyzed, now look at me  - Ariadne

SOURCE :
STILLKICKING.INFO